Happy New Year to all! Yesterday Nicole and I had a family meeting with Pierce's medical team. Among the topics of conversation were how Pierce has been doing, next steps and general Q&A for us. The doctors are not all on the same page. Some think that we should wait a couple of weeks to see how he grows and see if there can be any more progress made in a couple of weeks. The other side of the team thinks that we should have a tracheostomy. After discussing the pros and cons with the Occupational Therapist, NICU Attending, Neurologist, Plastic Surgeon and the ENT surgeon, we decided that we will put him on the list for trach surgery for two weeks. That way we get the best of both worlds...two weeks to grow and make progress and if not, then we can go ahead with the surgery. Everyone seemed to be in agreement that this was a reasonable course of action.
There has been a decent amount of progress and a trach is a very life changing (for us - it is reversible for him) event. It requires a lot of care, time and effort and even though it can come out, it would be in a minimum of a year. That is a scary proposition and we could not just call a babysitter, go to any daycare, etc., so we like waiting, but we know that we cannot be here forever.
Anyway, here is a video that I took a few days back. You will see Superman socks on his hands cause he kept reaching for the stitches and the nose cannulla. Grandma K is there showing him his parrot (which he loves) and he tries to reach out for him.
All in all, not a bad couple of days. Ben
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