Tuesday, December 10, 2013

Pierce - day two through four

So, yes, I am skipping a few days here as not much changed. Pierce is still in the NICU.  It has been determined that he has Pierre Robin (ro-BAN) Sequence which means he has a small chin, large tongue and cleft soft palate. This causes his tongue to fall back in his mouth obstructing his airway. So, for now they have him on a breathing machine (I think it is called a bi - pap or nacpp?) To clear out his lungs from the meconium and keep him breathing.

He is really uncomfortable and does not like having his chin strapped shut. It is hard to see him this way, but it is best for him.

On day four they took him off the breathing machine and put him on a CPAP machine which doesn't breathe for him, but just provides pressurized flow. He does well with this machine and breathes best on his side or prone.

As it sits now, he is going to stay on this machine till Saturday and then they plan on taking him off and seeing if he can breathe himself. At that point they would then plan on transferring him.

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