All has been about the same since the last post, except for yesterday. We had a family meeting with all the specialists and our new NICU attending. After discussing all the various reasons why a tracheostomy would be a good idea, I asked about taking of the Cannula and the vapotherm. The NICU attending, Dr. Barahmi (sp?) Thought that was a fine idea. He said he could only get better, worse or stay the same but the NICU is the safe place to do it. So.... yesterday we took it off. He had been off for about 12 hours and has been doing well. About the same as before, but it had only been 12 hours. This is positive. He really may not have needed the support, which is what I have been saying. We are hopeful he will get better and learn how to swallow. For now, we will just watch him and see how he does. So far so good. Some pictures are below.
Go Pierce!
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